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Friday 20 Jul 2018

Spring is here at last PDF Print E-mail
Written by Sally Fletcher   
Thursday, 22 April 2010 19:40
It's been a few weeks since my last blog, since February I think we must have caught about every bug going, happily though everyone is well now and we finally have some spring weather here in the UK.

Ben has a new larger swing seat for the garden and last weekend joined his brother and sister planting seeds in the garden and playing in the sandpit that Adrian made them.

Ben had a really good weight gain at the beginning of the year following the placement of her permanant jejunal feeding tube, he dipped a bit in late February following having a couple of bugs and is now pretty steady, in the last few months he has become a solid boy rather than being very bony as he was before.

We hope that all of our friends well?

Sally & Ben x
It's one of those weeks PDF Print E-mail
Written by Sally Fletcher   
Tuesday, 09 February 2010 07:08
It's only Tuesday but already it's one of those weeks where I feel like I am trying to walk up a down esculator or talking to a brick wall when dealing with all the so called "professional" people we have to deal with to get anything we need.  Roll on the weekend!
Sally x
Get well soon PDF Print E-mail
Written by Sally Fletcher   
Wednesday, 27 January 2010 20:47
We were very sad this week to learn that a memeber of Ben's care team requires some time in hospital.  We all send her our best wishes and look forward to seeing her again soon. x
Happy Birthday Ben PDF Print E-mail
Written by Sally Fletcher   
Saturday, 23 January 2010 07:07
Ben was 7 years old yesterday.  He had a good day, we had to have an unavoidable appointment in the morning so that Ben's new chair could be adjusted.  In the afternoon a school friends Dad came to play his banjo for him which was really great.  We had chocolate cake with candles after dinner and Grandad and Margaret called in to join us for a slice.  Today we are having a party.  Happy Birthday Ben x
The new year's here! PDF Print E-mail
Written by Sally Fletcher   
Friday, 15 January 2010 13:17
We had a really good Christmas and hope everyone else did too.  Ben received some lovely presents incluidng a harp from TFH and lots of things from Novelty Warehouse, we especially liked some light up bath toys.

Ben continues to do well following his jejunostomy and although we still get some days with tummy cramps overall things are much better with far less gagging and improved fluid/food intake.

Yesterday to are surprise after a long saga Ben's new chair arrived, he chose the colour himself and it's bright red.

Wishing everyone a happy and healthy new year.

Sally & Ben x
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